I'm a 34-year-old stay-at-home mom. Eight years of marriage have brought my husband and I two cradles (David 2003 and Tania 2005) and two graves(Jeremiah 1/5/2007 and Miles 7/17/2007). Jeremiah and Miles both died of cord problems - hypercoiling and stricture, respectively. Since our losses I've been diagnosed with endometriosis, secondary infertility, and recurrent functional cysts. We also suffered an early loss in 2009 after trying Clomid. Three more cycles on Clomid and three on Follistim all had negative results. Now we're trying IVF.
The last few years have been dominated by death, depression, and pain. There's nothing I want more than to end my family with the joy of a new life. Here's a brief history of our journey so far.
The purpose of this blog is to create a place specifically about losing babies due to recurrent umbilical cord problems. I hope it will benefit others who find themselves in a similar situation, which unfortunately is certain to happen given the lack of interest the medical community has in finding out what causes recurrent umbilical cord problems, or even acknowledging it as a problem. I will list the very limited information I've found on the subject, including case studies, research, useful websites and organizations, and other information. There is also a detailed account of our journey, both from a medical and personal perspective.
If you've lost a child due to cord problems and would like to share your story, please email me and I'll post it here. Hopefully we can find some common threads that may help explain why this happens. We don't believe it is random.
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